many people have told me privately that they can’t believe we acted to quickly on what could have seemed like a random comment from odin. and some of those people are the very same people who want to believe that odin “outgrew” his prematurity soon after we left the nicu. i don’t know if you read the link to late vitreous hemorrhage, but the mean age of onset was 8.4 years old! yeesh.

and that’s just a rop issue – i don’t know if you’re on preemie-l but it’s certainly common enough for someone to chime in with the almost cliche, “hi. i haven’t been around much for a few years and we thought we were over this whole preemie thing but so and so is now 6 and we’re being told she has such and such learning issue…”

no matter how many times i say it, i think many people don’t really understand how little is known about 23-26 weekers because so little long term research has been done ( because until very recently there weren’t any subjects alive to study ).