Odin

We follow the progress of Odin, a young boy that was born with a lot of the same challenges as Jack. He had the same ROP surgery that Jack had, and he was born 25 weeks, one week earlier than Jack. He’s a super-cutie. We’ve gained some strength from watching the Snowdeal clan work through the issues of preemie parenthood. 

Odin

 

This week, Odin woke up and was having trouble seeing out of his right eye. Over the past several days, it’s become clear that he is in serious danger of having a retinal detachment, which leads to blindness. Sarah and I have been thinking about Odin all week, and we’re sending all our good vibes his way.

The thing thats scary about this is that Odin is 4 years old. And as Eric, Odin’s dad, eloquently put it: “day 1464: the long arm of prematurity reaches out and sucker punches us.

That’s what really gets me. It may be years before we fully understand all the effects of Jack’s prematurity. And even as I strive to put it behind us and move on with the normal worries of parenthood, the reality is that there are unknown effects of prematurity that can take years to manifest. 

I recognize that all parents worry about their kids. I get that. I mean, my mom says, “Just wait ’till he asks you for the car keys and says he’ll be home by 3:00am. Now that’s worry!

But I feel like for us, there is another layer. We get to worry about all that normal parent stuff, plus we have to try not to obsess or project our preemie worries onto Jack. 

Last thought.  Snowdeal posse, we’re wishing you the best of luck, and reminding you that Odin is a very very tough cookie.

 

 

 

One Reply to “Odin”

  1. thanks for the well wishes!

    many people have told me privately that they can’t believe we acted to quickly on what could have seemed like a random comment from odin. and some of those people are the very same people who want to believe that odin “outgrew” his prematurity soon after we left the nicu. i don’t know if you read the link to late vitreous hemorrhage, but the mean age of onset was 8.4 years old! yeesh.

    and that’s just a rop issue – i don’t know if you’re on preemie-l but it’s certainly common enough for someone to chime in with the almost cliche, “hi. i haven’t been around much for a few years and we thought we were over this whole preemie thing but so and so is now 6 and we’re being told she has such and such learning issue…”

    no matter how many times i say it, i think many people don’t really understand how little is known about 23-26 weekers because so little long term research has been done ( because until very recently there weren’t any subjects alive to study ).

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