Archive for November, 2007

Giving Thanks

Sunday, November 25th, 2007

A little secret. Thanksgiving is my favorite holiday. It’s a holiday that involves eating and drinking and being with the ones you love, no presents, no jolly man to scare the kids, no eight lights that require a sprint home by sun-down.

On Thursday we cooked for 16 adults and 4 kids. Despite the hectic pre-prep the day went relatively smoothly. We had a themed “old-fashioned” style thanksgiving which resulted in Arch wearing a turtleneck and blazer, together and I wore a dress, heels and a lovely hot-pink apron. What with all the hullabaloo, cooking, dressing, chasing Jack I had little time for reflection, but when I got to it I was reminded of just how damn lucky we are. We were surrounded by friends and family, with a healthy (well, check that, he has another ear infection), happy, super smiley baby boy.

This Thanksgiving was a far cry from where we were last year. A dinner that was ordered in and my mom as our only guest (not that having my mom as a bad thing, but it was 1 guest versus 15) and a baby, home from the hospital for 2 weeks who was still not technically supposed to be born.

We’re lucky to have our friends, our family and our boy. We’re also very lucky to have made some new friends, some of whom we’ve met in the flesh, and some we’ve just met over the inter-webs. We’re thankful that we have you in our lives and we’re hoping that someday we can find a way to pay it forward. So. With that sneaky and truly heart felt intro, I bring you to the starving children portion of our program…we still have 4 more days until the end of Prematurity Awareness Month. If you’d like to donate to the March of Dimes to help educate the general public on premature birth, please consider making a contribution in Jack’s name.

Just to make sure you’re paying attention – here are some new pics of two fantastic preemies.

Nina

Nina, Jack’s preemie buddy from the NICU. Isn’t she gorgeous?!

in the elevator 2

Jack, in the elevator coming back from visiting Nina.

Hand Claps

Monday, November 19th, 2007

Overheard on a Saturday morning on the UWS:

Him: Yeah! That’s my boy! Hand Clapping party time!

Her: C’mon Jack, clap those little hands, shake that baby booty.

The Boy: A clap and a miss! And then a clap. And then some squealing

Her: Yeah! Jack, soon you’ll be triple clapping and singing along to The Joker.

Him – with a look of admiration: Wow. I am impressed, everyone else calls that song, Space Cowboy.

Her: With a knowing nod. And that’s why you married me honey. Because I know the proper names of all of Steve Miller’s greatest hits.

totally lame (and yes, I am re-using that headline)

Thursday, November 15th, 2007

Me. I am totally lame. Why? Because I haven’t had a chance to respond to all of you lovely people who sent me birthday wishes – here. Let me use the interweb:

*thank you, yes it was a great day and I love you as well.*

I am so far underwater at work it’s actually kind of funny. Except for the part where I can’t remember to send thank you notes to my friends and family. That’s not funny. So, I am sorry. I’ll get there, I promise. Really, the notes will be individualized and everything.

Oh. In news that is not lame, last weekend we visited with Baby Nina – Jack’s NICU buddy. And what a beautiful little girl she is. Big baby fun was had by all and Jack discovered that Kitty Cats are totally awesome. Once Arch gets through uploading the pictures we’ll have photographic proof that the meeting we’ve been trying to schedule for 1 year actually happened! However, I am also lame enough to have not sent Nina’s family a thank you note either. (sorry Liz!)

In lieu of words

Thursday, November 8th, 2007

happy again

Playing on the Jungle Gym

jack

What your Holiday Card will look like if I get my act together.

The eating thing

Thursday, November 8th, 2007

So. I bitched, I threatened, I cajoled, heck I kicked up enough dust that someone from EI actually noticed and we finally (3 months later) had our speech and feeding evaluation this past Saturday.

There is a dirty secret about EI evals…. never.sound.optimistic. This is harder than it sounds because, clearly, we think Jack is a super genius. But the fact of the matter is, if you don’t make the situation sound really craptastic than you’re not going to get the services you need. We learned this the hard way when he came home from the NICU at 0 days adjusted (or 3 months old). He had his first evaluation and the woman doing it said that he was “just fine for a newborn” and I was all “well of course, have you seen him? I mean, he’s a rockstar – etc.etc.” Guess what happened? No services. But the minute I was like…”well he is 9 MONTHS OLD and isn’t rolling over.” at the next evaluation, well he got services.

So anyway, I was fully prepared to make it sound like Jack couldn’t eat all. I went shopping for all of his least favorite foods (pretty much everything, other than yogurt), I was set to make our case. And then the Evaluator was an hour late for his eval and the kid was starving and so I made him his favorite lunch that doesn’t consist of yogurt, Dr. Praeger’s fish sticks and potato pancakes and thought to myself, “shit, we’re never going to get services, he’s going to scarf this down.” – and he did. And the evaluator watched him as he stuffed his face and then refused to swallow. She watched our normal routine of holding his head, sweeping out everything from his mouth and trying again. She watched him hold string cheese in his mouth for 20 minutes. She watched him stuff about 10 goldfish in his mouth and not chew. And she said, “why of course he needs services, he must be starving all the time, he’s not swallowing anything.” and then I felt even more guilty. More guilty that I didn’t just go out and get him services myself while waiting for the stupid state to catch up. Guilty that I couldn’t figure out another way to get EI to actually pay attention to us.

Consider this lesson officially learned.

Oh, and he qualified for speech as well. He has no words and apparently he’s supposed to have between 8 and 10? And he only babbles monosyllabic-ly? Fuck.

So the good news is we get services. The bad news is, we need services.